袁长蓉

教授 博士生导师，美国护理科学院Fellow

复旦大学护理学院

联系方式：办公室电话（021）6443 1803

Email：yuancr@fudan.edu.cn

研究方向：癌症照护、护理信息和慢性病管理

教学及科研情况

承担“护理科研原则与方法”“护理学导论”“质性研究的理论与实践” “人本视角下的创业实践”等课程的教学。担任人卫社十三五研究生规划教材《护理理论》主编。参与《Pediatric Oncology Nursing: Defining Care Through Science》、《Giving Through Teaching: How Nurse Educators Are Changing the World》、《肿瘤护理学》、《老年护理学》等专著的编写。

研究课题包括癌症幸存者自我健康管理系列研究、患者报告结局、基于移动医疗智慧护理干预的慢病管理及老年护理、基于大数据分析的精准护理系列研究等。近年来获国家自然科学基金、美国癌症协会（ONS）科研基金、上海市自然科学基金、上海市科委国际合作基金、上海市科委软科学研究基金等课题20余项，以第一或通讯作者发表论文290余篇，其中SCI收录论文60余篇。指导博士后3名，硕士或博士研究生40余人，其中，2位硕士研究生获上海市优硕，5位博士研究生获国家留学基金委项目资助，1位博士研究生获澳洲“奋进研究学者”奖学金。

学术任职

现任复旦大学护理学院教授，复旦大学护理学院患者体验研究中心主任，患者报告结局国际联盟中国中心(PNC-China)负责人。兼任国务院学位委员会第八届学科评议组成员、中国优生优育协会护理学专委会主任委员、中国生命关怀协会人文护理专业委员会副主任委员、中国卫生信息与健康医疗大数据学会护理学分会副主任委员、上海市抗癌协会肿瘤护理专委会副主任委员。担任《Cancer Nursing》、《Journal of Advanced Nursing》、《解放军护理杂志》、《护理学杂志》等多本国内外护理期刊编委及同行评议专家。曾入选上海市浦江人才计划，获军队育才银奖、个人三等功、上海市三八红旗手标兵、全国三八红旗手、复旦大学“钟扬式好老师”，连续入选2018、2019、2020、2021年爱思唯尔（Elsevier）中国高被引学者。

近五年主要论文

1.Cai T, Wu F, Huang Q, et al. Validity and reliability of the Chinese version of the Patient-Reported Outcomes Measurement Information System adult profile-57 (PROMIS-57)[J]. Health and Quality of Life Outcomes, 2022,20(1):95.

2.Ning L, Li Y, Zhong C, et al. Hope and Worry: An Interpretative Phenomenological Analysis of Psychological Experiences Associated With Targeted Drug Therapy Among Patients With Advanced Non-Small-Cell Lung Cancer[J]. Cancer Nursing. 2022,45(3):E674-E679.

3.Yuan C. The Strength of 'Nursing Plus' Benefits Cancer Care[J]. Cancer Nursing. 2022,45(3):171.

4.Shen N, Ruan H, Sun J, Li Y, He M, Yuan C, Chang L. Translation Into Simplified Chinese and Cultural Validation of the Pediatric Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events Using Cognitive Interviewing[J]. Cancer Nursing. 2023,46(1):E31-E40.  

5.Wang J, Bi X, Wang J, et al. Chinese parents' caregiving ability for children with haematological malignancies: A latent class analysis[J]. Nursing Open. 2022,9(4):2073-2083.

6.Sun H, Yuan C, Qian Q, et al. Digital Resilience Among Individuals in School Education Settings: A Concept Analysis Based on a Scoping Review[J]. Frontiers in Psychiatry. 2022,13:858515.

7.Cai T, Huang Y, Huang Q, et al. Symptom trajectories in patients with breast cancer: An integrative review[J]. International Journal of Nursing Sciences. 2021,9(1):120-128.

8.Geng Z, Yuan C. Usability Test of a Mobile Physical Activity Program for Breast Cancer Patients During Chemotherapy: A Pilot Study[J]. Studies in Health Technology Informatics. 2021,284:336-338.

9.Song L, Cai T, Wu F, Cui J, Zhou L, Yuan C. Attitudes toward and Perceptions of Educational Needs for End-of-Life Care among Health Professions Students: A Cross-Sectional Study in China[J]. the Journal of Pain and Symptom Management. 2021,62(6):1229-1238.

10.Cai T, Huang Q, Yuan C. Emotional, informational and instrumental support needs in patients with breast cancer who have undergone surgery: a cross-sectional study[J]. BMJ Open, 2021,11(8):e048515.

11. Sheng Z, Wang J, Sun K, et al. Nurses' Attitudes Toward Internet-Based Home Care: A Survey Study[J]. Computers Informatics Nursing, 2020,39(2):97-104.

12. Cai T, Qian J, Huang Q, Yuan C. Distinct dyadic coping profiles in Chinese couples with breast cancer[J]. Supportive Care in Cancer,2021 ,29(11):6459-6468.

13. Cai T, Huang Q, Yuan C. Profiles of instrumental, emotional, and informational support in Chinese breast cancer patients undergoing chemotherapy: a latent class analysis[J]. BMC Womens Health, 2021,21(1):183.

14. Huang Q, Wu F, Zhang W, Stinson J, Yang Y, Yuan C. Risk factors for low self-care self-efficacy in cancer survivors: Application of latent profile analysis[J]. Nursing Open. 2022,9(3):1805-1814

15. Cai T, Huang Q, Wu F, Yuan C. Psychometric evaluation of the PROMIS social function short forms in Chinese patients with breast cancer[J]. Health and Quality  of Life Outcomes, 2021,19(1):149.

16. Song L, Cai T, Wu F, Cui J, Zhou L, Yuan C. Attitudes toward and Perceptions of Educational Needs for End-of-Life Care among Health Professions Students: A Cross-Sectional Study in China[J]. the Journal of Pain and Symptom Management,2021,19:S0885-3924(21)00340-7.

17. Zhang W, Stinson J, Huang Q, Makkar M, Wang J, Jibb L, Cheng L, Yuan C. Identification and Characteristics of the Three Subgroups of Pain in Chinese Children and Adolescents with Cancer[J]. Journal of Pediatric Nursing, 2021,59:e13-e19.

18. Yuan C. Data Quotient: The Future Competence of Oncology Nurses[J]. Cancer Nursing, 2021,44(4):261-262.

19. Ning L, Li Y, Zhong C, Wang L, Yuan C, Chen Y, Xia Y. Hope and Worry: An Interpretative Phenomenological Analysis of Psychological Experiences Associated With Targeted Drug Therapy Among Patients With Advanced Non-Small-Cell Lung Cancer[J]. Cancer Nursing. 2022,45(3):E674-E679.

20. Mo L, Fu Y, Mao L, Zhu L, Zhou Y, Huang Q, Yuan C. Identifying typologies of quality of life in patients with moderate to severe hand trauma based on patient-reported outcomes[J]. Annals of Palliative Medicine, 2021,10(9):9810-9819.

21. Cai T, Huang Q, Wu F, Xia H, Yuan C. Psychometric validation of the Chinese version of the PROMIS Social Relationships Short Forms[J]. Nursing Open,2021,9(1):394-401.

22. Cai T, Huang Y, Zhang Y, Lu Z, Huang Q, Yuan C. Mobile health applications for the care of patients with breast cancer: A scoping review[J]. International Journal of Nursing Sciences, 2021,8(4):470-476.

23. Huang Q, Geng Z, Fang Q, Stinson J, Yuan C. Identification of Distinct Profiles of Cancer-Related Fatigue and Associated Risk Factors for Breast Cancer Patients Undergoing Chemotherapy: A Latent Class Analysis[J]. Cancer Nursing, 2021,44(6):E404-E413.

24. Cai T, Qian J, Yuan C. Dyadic Coping in Couples With Breast Cancer in China[J]. Cancer Nursing, 2021,44(6):E458-E466.

25. Gao WJ, Yuan CR. Translation and cultural adaptation of the Pediatric Patient-Reported Outcome Measurement Information System-Emotional Distress item banks into Chinese[J]. Journal of Specialists in Pediatric Nursing,2020,26(3):e12318.

26. Gao WJ, Yuan CR, Zou YC, Lin H. Development and Pilot Testing a Self-reported Pediatric PROMIS App for Young Children Aged 5-7 Years[J]. Journal of Pediatric Nursing, 2020,53: 74-83.

27. Wu F, Howell D, Fang Q, et al. Trajectory Patterns and Factors Influencing Self-management Behaviors in Chinese Patients With Breast Cancer[J]. Cancer Nursing,2020, 43(2): E105-E112.

28. Yuan C. How Secrets Behind Data Reshape the Model of Cancer Care[J]. Cancer Nursing, 2020,43(2):89-90.

29. Yuan, X, Yuan C, et al. Patterns of sexual health in patients with breast cancer in China: a latent class analysis[J]. Supportive care in cancer: official journal of the Multinational Association of Supportive Care in Cancer, 2020,28(11):5147-5156.

30. Yuan X, Wu F, Howell D, Yuan C. Translation, Validity, and Reliability of the Chinese Version of the Breast Cancer Survivor Self-efficacy Scale in China[J]. Cancer Nursing,2019, 42(5): E31-E40.

31. Zhang J, Wang J, Zhou J, et al. Body composition patterns and breast cancer risk in Chinese women with breast diseases: A latent class analysis[J]. Journal of Advanced Nursing, 2019, 75(11): 2638-2646.

32. Yuan C. The Easier, the Better: Truth of Measurement[J]. Cancer Nursing, 2019, 42(6): 429.

33. Liu Y, Yuan C, Wang J, et al. Chinese Version of Pediatric Patient-Reported Outcomes Measurement Information System Short Form Measures Reliability, Validity, and Factorial Structure Assessment in Children with Cancer in China[J]. Cancer Nursing, 2019, 42(6): 430-438.

34. Wang J, Howell D, Shen N, et al . mHealth Supportive Care Intervention for Parents of Children with Acute Lymphoblastic Leukemia: Quasi-Experimental Pre- and Postdesign Study[J]. JMIR mHealth and uHealth, 2018,6(11):e195.

35. Yuan C. Helping Patient-Reported Outcomes Be 'At Home' in Clinical Practice[J]. Cancer Nursing, 2018, 41(6): 433.

36. Geng Z, Ogbolu Y, Wang J, Hinds PS, Qian H, Yuan C. Gauging the Effects of Self-efficacy, Social Support, and Coping Style on Self-management Behaviors in Chinese Cancer Survivors[J]. Cancer Nursing, 2018, 41(5): E1-E10.