袁长蓉

教授 博士生导师,美国护理科学院院士。

复旦大学护理学院

联系方式:办公室电话(021)6443 1803

Email:yuancr@fudan.edu.cn

研究方向:癌症照护、护理信息和慢性病管理。

教育背景

1992年毕业于第二军医大学护理学专业,获学士学位

1999年获第二军医大学护理学硕士学位

2006年获第二军医大学社会医学与卫生事业管理专业博士学位

教学及科研情况

承担“护理科研”、“质性研究”、“护理学科发展前沿”等课程的教学。担任人卫社十三五研究生规划教材《护理理论》主编。参与《Pediatric Oncology Nursing: Defining Care Through Science》、《Giving Through Teaching: How Nurse Educators Are Changing the World》、《肿瘤护理学》、《老年护理学》等专著的编写。

主要研究方向为癌症照护、护理信息和慢病管理。研究课题包括癌症幸存者自我健康管理系列研究、患者报告结局、基于移动医疗智慧护理干预的慢病管理及老年护理、基于大数据分析的精准护理系列研究等。近年来获国家自然科学基金、美国癌症协会(ONS)科研基金、上海市自然科学基金、国际合作基金、上海市科委软科学研究基金等课题10余项,以第一或通讯作者发表论文245篇,其中SCI收录论文44篇。指导硕士或博士研究生四十余人,其中,2位硕士研究生获上海市优硕,5位博士研究生获国家留学基金委项目资助,1位博士研究生获澳洲“奋进研究学者”奖学金。2015年当选美国护理科学院外籍院士。

学术任职

现任复旦大学护理学院教授,复旦大学护理学院患者体验研究中心主任,患者报告结局国际联盟(PHO)中国中心(PNC-China)负责人。兼任中国优生优育协会护理学专委会主任委员、中国生命关怀协会人文护理专业委员会副主任委员、中国卫生信息与健康医疗大数据学会护理学分会副主任委员、上海市抗癌协会肿瘤护理专委会副主任委员、上海市中西医结合护理专委会副主任委员等。担任《Cancer Nursing》、《Journal of Advanced Nursing》、《解放军护理杂志》、《护理学杂志》等多本国内外护理期刊编委及同行评议专家。曾入选上海市浦江人才计划,获军队育才银奖、个人三等功、上海市三八红旗手标兵、全国三八红旗手、复旦大学“钟扬式好老师”,连续入选2018、2019年爱思唯尔(Elsevier)中国高被引学者。

近五年主要论文

1、Wang J, Yao N, Wang Y, Zhou F, Liu Y, Geng Z, Yuan C*. Developing “Care Assistant”: A smartphone application to support caregivers of children with acute lymphoblastic leukaemia. J Telemed Telecare, 2016, 22(3): 163-171.

2、Wang J, Yao N, Shen M, Zhang X, Wang Y, Liu Y, Geng Z, Yuan C*. Supporting caregivers of children with acute lymphoblastic leukemia via a smartphone app: a pilot study of usability and effectiveness. Comput Inform Nurs, 2016, 34(11):520-527.

3、Liu Y, Yuan C*, Wang J, Brown JG, Zhou F, Zhao X, Shen M, Hinds PS. Comparability of the Patient-Reported Outcomes Measurement Information System Pediatric short form symptom measures across culture: examination between Chinese and American children with cancer.Qual Life Res. 2016 Oct;25(10):2523-2533.

4、Yuan C. Rethinking M-health in Cancer Care: From the Perspective of Patient Participation. CANCER NURS 2016, 39(4): 253-254.

5、Wei C, Nengliang Y, Yan W, Qiong F, Yuan C*.The patient-provider discordance in patients' needs assessment: a qualitative study in breast cancer patients receiving oral chemotherapy.J Clin Nurs. 2017 Jan;26(1-2):125-132.

6、Geng Z, Howell D, Xu H, Yuan C*.Quality of Life in Chinese Persons Living With an Ostomy: A Multisite Cross-sectional Study.J Wound Ostomy Continence Nurs. 2017 May/Jun;44(3):249-256.

7、Yuan C. The Voices of Patients: Do They Really Matter? CANCER NURS 2017, 40(2): 87.

8、Wang J, Yao NA, Liu Y, Geng Z, Wang Y, Shen N, Zhang X, Shen M, Yuan C. Development of a Smartphone Application to Monitor Pediatric Patient-Reported Outcomes. CIN-COMPUT INFORM NU 2017, 35(11): 590-598.

9、Wang J, Shen N, Zhang X, Shen M, Xie A, Howell D, Yuan C. Care burden and its predictive factors in parents of newly diagnosed children with acute lymphoblastic leukemia in academic hospitals in China. SUPPORT CARE CANCER 2017, 25(12): 3703-3713.

10、Geng Z, Ogbolu Y, Wang J, Hinds PS, Qian H, Yuan C. Gauging the Effects of Self-efficacy, Social Support, and Coping Style on Self-management Behaviors in Chinese Cancer Survivors. CANCER NURS 2018, 41(5): E1-E10.

11、Yuan C. Helping Patient-Reported Outcomes Be "At Home" in Clinical Practice. CANCER NURS 2018, 41(6): 433.

12、Wang J, Howell D, Shen N, Geng Z, Wu F, Shen M, Zhang X, Xie A, Wang L, Yuan C. mHealth Supportive Care Intervention for Parents of Children with Acute Lymphoblastic Leukemia: Quasi-Experimental Pre- and Postdesign Study. JMIR MHEALTH UHEALTH 2018, 6(e19511).

13、Liu Y, Yuan C, Wang J, Shen N, Shen M, Hinds PS. Chinese Version of Pediatric Patient-Reported Outcomes Measurement Information System Short Form Measures Reliability, Validity, and Factorial Structure Assessment in Children with Cancer in China. CANCER NURS 2019, 42(6): 430-438.

14、Yuan C. The Easier, the Better: Truth of Measurement. CANCER NURS 2019, 42(6): 429.

15、Zhang J, Wang J, Zhou J, Fang Q, Zhang N, Yuan C. Body composition patterns and breast cancer risk in Chinese women with breast diseases: A latent class analysis. J ADV NURS 2019, 75(11): 2638-2646.

16、Yuan X, Wu F, Howell D, Yuan C. Translation, Validity, and Reliability of the Chinese Version of the Breast Cancer Survivor Self-efficacy Scale in China. CANCER NURS 2019, 42(5): E31-E40.

17、Yuan, X, Yuan C, et al., Patterns of sexual health in patients with breast cancer in China: a latent class analysis. Supportive care in cancer: official journal of the Multinational Association of Supportive Care in Cancer, 2020.

18、Yuan C. How Secrets Behind Data Reshape the Model of Cancer Care[J]. Cancer Nurs, 2020,43(2):89-90.

19、Wu F, Howell D, Fang Q, Chen J, Yuan C. Trajectory Patterns and Factors Influencing Self-management Behaviors in Chinese Patients With Breast Cancer. CANCER NURS 2020, 43(2): E105-E112.

20、Gao WJ, Yuan CR, Zou YC, Lin H. Development and Pilot Testing a Self-reported Pediatric PROMIS App for Young Children Aged 5-7 Years[J]. Journal of Pediatric Nursing, 2020,53: 74-83.

21、Gao WJ, Yuan CR. Translation and cultural adaptation of the Pediatric Patient-Reported Outcome Measurement Information System-Emotional Distress item banks into Chinese. J Spec Pediatr Nurs. 2020 Nov 6:e12318. doi: 10.1111/jspn.12318. Epub ahead of print. PMID: 33159385.

22、Qingmei Huang, Zhaohui Geng, Qiong Fang, Jennifer Stinson, Changrong Yuan. Identification of distinct profiles of cancer-related fatigue and associated risk factors for breast cancer patients undergoing chemotherapy: a latent class analysis. Cancer Nursing, 2020 (online).